Consumer Health Data Privacy Policy
Effective Date: May 16, 2025
At Neurogen Biomarking LLC ("Neurogen," "we," "our," or "us"), protecting the privacy and security of your personal and health data is a top priority. This Consumer Health Data Privacy Policy explains how we collect, use, share, and protect your information when you access our services, including digital health assessments, blood biomarker testing, and related communications.
1. Scope and Applicability
This policy applies to all consumer health data collected by Neurogen Biomarking LLC through our website, mobile platforms, events, customer support interactions, and third-party service providers acting on our behalf.
2. What Information We Collect
We may collect the following types of consumer health data:
- Personal Identifiers: Name, address, email, phone number, date of birth.
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Health-Related Data:
- Self-reported cognitive concerns and medical history.
- Digital cognitive test results.
- Blood biomarker test results (e.g., p-tau217 and related indicators).
- Data shared during telehealth or follow-up consults with neurologists.
- Device and Technical Data: IP address, browser type, device ID, and interaction logs.
3. How We Use Your Information
We use your data to:
- Provide, manage, and improve our health testing services.
- Deliver accurate and timely test results.
- Facilitate telehealth consultations and neurologist follow-ups.
- Develop and improve early detection tools.
- Communicate with you about your health journey and offer educational resources.
- Comply with legal and regulatory obligations.
4. How We Share Your Information
We do not sell your consumer health data.
We may share your information with:
- Authorized health professionals providing you care through our platform.
- Third-party service providers (e.g., testing labs, mobile phlebotomists, IT providers) under strict confidentiality agreements.
- Regulatory bodies when required by law, subpoena, or public health authority.
- You – upon request, we will provide access to your data or transfer it to a healthcare provider of your choice.
5. Consumer Rights
You have the following rights with respect to your consumer health data:
- Right to Access: You may request a copy of the personal and health data we hold about you.
- Right to Withdraw Consent: You may withdraw your consent to data collection or processing at any time, subject to limitations where required by law.
- Right to Deletion: You may request that we delete your data, and we will comply unless retention is required for legal or medical reasons.
- Right to Correct: You may request that we correct any inaccurate or incomplete data.
- Right to Limit Use/Sharing: You may opt out of certain uses or disclosures of your data.
To exercise these rights, please contact us at privacy@neurogenbiomarking.com.
6. Data Security
We implement administrative, technical, and physical safeguards to protect your data, including:
- Encryption of sensitive health information.
- Secure data storage and access controls.
- Routine vulnerability and privacy audits.
7. Data Retention
We retain consumer health data only as long as necessary to:
- Provide services and support.
- Meet legal and regulatory obligations.
- Conduct quality assurance and product development.
8. Children's Privacy
Our services are not intended for individuals under the age of 50. If we learn we have collected data from a minor without appropriate authorization, we will promptly delete it.
9. Updates to This Policy
We may update this policy periodically. Material changes will be communicated via email or through our website. Please review this policy regularly.
10. Contact Us
If you have any questions about this policy or how your data is handled, please contact:
Privacy Officer
Neurogen Biomarking LLC
123 Innovation Way, Suite 400
Chicago, IL 60601